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Dementia Inclusive Kiama Project: a blueprint for community support

The Bugle App

Mark Whalan

05 November 2023, 12:48 AM

 Dementia Inclusive Kiama Project: a blueprint for community supportLyndal Henderson

In a world where inclusivity is paramount, the Dementia Inclusive Kiama Project stands as a beacon of hope, transforming Kiama into a more open, friendly, and supportive community for residents living with dementia.


The Dementia Inclusive Kiama Project, which began its mission in 2014 as Australia's first national pilot, continues to thrive. Lyndal Henderson, a renowned advocate for dementia inclusivity, recently presented her insights to the Aged Care Royal Commission, shedding light on the challenges faced by people with dementia in the Kiama region.



One pressing issue she highlighted is the lack of wheelchair-accessible transport in Kiama, especially since the closure of Kiama Cabs. This unfortunate situation further isolates people with dementia. Currently, the Gerringong Uniting Church has a wheelchair-accessible bus, but it lacks a driver.


Lyndal's partner, Veda, has a rare form of dementia that affects her speech, reading, and writing abilities, illustrating the need for improved support and understanding.


The Kiama Electorate is home to an estimated 1200 people living with dementia, with at least 300 in the Kiama LGA. This number is projected to rise to around 4000 within the next 25 years, making dementia inclusivity more critical than ever.



The Dementia Inclusive Kiama Project consists of two local groups: the Dementia Alliance, comprising people with dementia, their supporters, and relevant stakeholders, and the Dementia Advisory Group, exclusively made up of people with dementia and their supporters. These groups meet monthly for social gatherings and picnics.



The project's primary goal is to simplify daily tasks for people with dementia, such as grocery shopping, socialising at local clubs, and visiting the post office. This is achieved through clear signage and community members who have received dementia awareness training.


The Blue Haven Community Transport service, a lifeline for many, is set to be sold as part of the Kiama Bonaira site sale by Kiama Council, which presents a significant challenge.


Kiama Municipal Council's efforts haven't gone unnoticed, as it received two national awards in 2016 - the National Disability Award and a National Local Government Award. The Council's commitment to creating a dementia-friendly Kiama was further acknowledged by the World Health Organisation Healthy Conference.



In 2023, the project forged ahead with the support of partners like the Gerringong Rotary Club, Dementia Australia, and the University of Wollongong.


For those interested, the Dementia Advisory Group holds its meetings every Wednesday, with the next one scheduled for November 1 at Cooke Park in Gerringong Boat Harbour at 10:30 am. Additional information can be found on the Dementia Illawarra Shoalhaven website at www.dementiaIS.com or by contacting Graham at 0414 681 051.


The Dementia Inclusive Kiama project serves as a model for fostering understanding and support for people living with dementia. It demonstrates the power of a compassionate community and the profound impact it can have on the lives of those facing this challenging condition.